Tag: Autism

Something Wicked This Way Comes

Even though I strongly dislike both female leads, I watched Wicked because I’m a Wizard of Oz movie fan. I’ve never read Wicked or seen the play, but had heard good things about the play. I have to say, I love the new movie, and it quickly became my latest comfort movie. Because of it, I started reading the Oz books by L. Frank Baum, which are offered for free on Apple Books as part of their classics collection. There are a ton of classic books for free there!

Due to my writing classes, this year has been one full of thinking about the past and finally trying to work through it and sit with the emotions the memories evoke. Unfortunately, Wicked makes me think of how I was treated by my dad and his second wife (the Ogre – she looks just like Fiona, but ugly).

Dad and the Ogre didn’t really care for either of us kids, but my brother was treated marginally better than I. Dad did steal $12,000 from my brother (of which he used a portion to purchase the Ogre’s engagement ring), after convincing him to not trust banks, and my brother stayed in contact with him after that because of my nieces, so that is where we differed because I went no contact after yet another birthday was missed/forgotten by Dad. For the record, he made zero attempts to contact me after I decided to not chase after him as I had done my entire life. Actually, he never attempted to contact me my entire life…

Presently, watching how Elphaba, the Wicked Witch of the West, is treated by her father in Wicked, and how Elphaba’s sister Nessarose is so favored, really stirred up memories and emotions. Posting these memories and thoughts on social media has been interesting to me since I come from a family that considers “airing dirty laundry” a bad, scandalous thing. I find it therapeutic and like I am seen 🤷‍♀️. My family is mostly on Facebook, so I have my site, IG, and Threads to speak freely, but, honestly, why can’t I speak freely wherever I want? I went through it and live in the aftermath, so I should be able to share it. Plus, I chose to air this dirty laundry because it is directly connected to my poetry and writing that I have chosen to publish. I think sharing some life stories provides context for my published work. It’s not like I have a fan base, anyway, so who’s really going to be reading what I write?

I have been kicking around posting the beginnings of my memoir here that I started in class and continuing it in the blog. Again, I have no readers/online presence to speak of, but I can pretend I do and work through some pent-up feelings in that way. I don’t know what it is, but some people find it helpful having, or imagining, strangers read about their lives and care on some level. I am one of those people. As a writer, there is no feeling quite like when someone tells you they can relate to something you have written and that it has impacted them. I’ve had this happen several times on All Poetry, especially with my latest poems about my childhood, and it just feels like I am connecting with people and making them feel things, which is so cool.

Going back to Wicked, I would recommend seeing it, especially people who love musicals and/or Broadway shows. I don’t like some popular musical movies, like Hairspray, Grease, Mary Poppins, The Sound of Music, to name a few, but if I like the songs, I will watch the heck out of them. I love Sweeney Todd and Repo! The Genetic Opera and The Devil’s Carnival and Cry Baby. Okay, those are pretty dark ones. I also love Disney animated musicals, i.e., Enchanted, Snow White & the Seven Dwarfs (which should be Dwarves, but whatever), Frozen, Tangled, The Little Mermaid (the good one), Beauty & the Beast, and the like.

As mentioned, I am not an Ariana fan and am no longer a Cynthia fan since her uncalled-for outburst (I had only seen her in that El Royale movie, anyway), but the story, singing, songs, acting, and sets are just awesome. Even though I’m a stickler for canon and knowing the narrative, I love the storylines of Wicked and Oz the Great and Powerful (completely separate from the Wicked material). Of course, neither follows the books. Oz… does well as a prequel to The Wizard of Oz. Wicked gives another viewpoint with completely different character names and explanations from Oz…, so I consider it more a fanfiction book/musical/movie. Since they are all entertaining and visually stunning, I have been pretty lax in trying to smoosh them all together.

Adam mentioned Wicked being my new comfort movie, which I found sweet that he noticed. After Mom died, the poor guy had to listen to Frozen multiple times a day for months, then Bob’s Burgers. He knew the songs for both as well as I did! I think we live a very immersive life, and being in the same room 24/7 really solidifies that.

Less Stress? Yes!!

Well…It has been a time, let me tell you. I don’t know what I’ve mentioned and what I haven’t, so I may repeat myself; just pretend it’s for emphasis. I got my cap, gown, honors cord, and diploma holder (frame?) from college, and I was pretty excited. The commencement I’m attending virtually is on December 14, but I have not registered for it because FAFSA is stupid. I consolidated my loans a few weeks or months ago and doing that created an overpayment of $1, which isn’t even an overpayment but some residual from the consolidation.

Note the “Excess Amount”

This could not happen. I can have $32,000 in student loans, but $32,001 is unacceptable? So, these geniuses stop my financial aid and throw me into forbearance and nobody thinks to inform me about it for two months. The only reason I found out is because Adam called the school, but we didn’t find out in the first phone call — oh, no, it took four phone calls with 2- and 3-hour hold times before we were told what was going on.

Fortunately, I am not kicked out of school (yet), and the school financial services people were very nice and empathetic, if a bit in the dark about my account. We are heading into the third month of dealing with this and last term’s aid has not shown up. We’re supposed to receive this term’s aid next week. So…yeah. I’m essentially late in paying for three of my classes through no fault of my own (unless you count me choosing to consolidate loans, then it is my fault) and I am supposed to graduate next month. The fat cherry on that sundae is my last class is a redo. I’m taking Seminar in American Literature instead of Seminar in Global Literature, which I took the last time (I switched to get away from the instructor) and I am stuck with the same instructor who accused me of using AI for my homework (I’m a writer; I don’t rely on AI). The stress has been great, literally and sarcastically.

Speaking of stress, I downloaded StressWatch for my Apple Watch, and it is pretty cool. It uses HRV (heart rate variability) to monitor stress levels and lets me know when I’m becoming stressed. It knows several minutes before I even start to experience symptoms. I also recently downloaded an app called Finch, which is supposed to help with ADHD and executive dysfunction. I shared it with Adam, and we are two little baby finches sending hugs and gratitude to each other while completing goals. It’s very cute.

In other news, I was prescribed an insulin pump and had to cancel my training for it three times because of transportation issues, and Adam and I just figured it out ourselves. Adam reads the book and shows and tells me what to do because I can’t remember what I read and get stuff confused. It was very overwhelming at first, but I’m slowly getting the hang of it. That’s not counting me wasting five infusion sets because I forgot to remove the needle cover for Every. Single. One. I had a mini meltdown and threw one of them away too hard for Adam’s liking, so he came over and put the sixth one on me and it took him, like, five seconds to do.

My amoxapine is helping with my productivity at work, but not my memory and executive dysfunction. I can see why since it’s not a stimulant, but I was hoping. The ADHD has worsened so much since Mom died — either that or she deftly handled my limitations and didn’t make them feel like limitations, which she totally did with my autism. I could feel and think I am being normal (for me) because she had my back, and I just flew through life none the wiser until I got evaluated after she died.

I am Floored

I have a DIY issue in the foreseeable future, and I’m not sure what I’m going to do about it (advice is welcomed). I will be replacing Mom’s room’s carpeting with vinyl tiles and am mentally running into roadblocks. Firstly, Ollie is a digging pup (more on that below), which is really cute to watch, but I am afraid he is going to try to “dig up” the tiles unless I get the room done in a day. He already digs what’s left of the remaining carpet that I haven’t pulled up before he lies down on it, and he also lies on the floor and digs the carpet padding out from under the carpet that’s under the edge of the bed. Fortunately, he cannot fit under the bed to get at more carpet.

The bed is my next issue. Mom’s bed frame is a queen-size pine sleigh bed and it’s big and heavy. I got a springless mattress and box frame when I replaced the mattress, and they are ridiculous to try to move. It’s like trying to move a dead body. Like, if I need to move the mattress up toward the headboard, I literally cannot do it. It just bends and folds in on itself and won’t go anywhere; Adam has to pick it up and move it, which is hard on him because, as stated, the mattress is heavy.

Because the bed frame is so big, it won’t fit through the doorway in one piece. I thought about tiling the exposed floor, moving the bed, tiling the floor where the bed was, and moving the bed back into place, but since it’s so heavy and not on wheels, I am afraid of messing up or breaking the finished tiles. Plus, the room doubles as my office, so I have Mom’s large desk and the shelves attachment I took off the desk and set beside it so my TV/monitor would fit. I don’t know how much working room I will have, and it seems like it will be kind of Tetris-y if I don’t take anything out of the room. I don’t mind taking stuff out of the room, but my computer needs to be set up and working so I can work. Alas!

Oh! The digging pup! Well, somehow, we have two roses of Sharon growing where they shouldn’t be growing. Mom started a line of them to separate us from the neighbors (they were always sketchy before the landlady’s son, who I attended high school with, put in a house on the property), but these two bushes are right beside the cement porch steps. Actually, I found so much crap on the ground at the back of our side porch and I have no idea how it got there. It looks like a trash bag busted and wasn’t picked up, but we don’t keep the trash near the porch.

I want the bushes moved because one is right up against the steps and I have a feeling the roots are already under them and I don’t want my steps to break. The other one is farther away, but the bushes get big around and will block the steps eventually. Adam started to try and unplant them but they really want to stay. Since Ollie likes to dig, I called him over and started digging, which he joined me. He moved a lot more dirt than I did. He just went to town on it.

Yesterday, I went back out there and started digging at the side of the bush and he took it from there. The bush still won’t budge! However, Ollie did find a smoke alarm, like, 6 inches down at the bottom of the bush! I got rid of one years and years ago, but I have no clue how it made it to the backyard steps. Ollie was very excited about his treasure and Nev really wanted it. They play well together, but when Ollie tells Neville no about something, Nev backs off even though he is eight months older. Maybe because Ollie is 10 feet tall.

Oliver has started blocking when he is playing with Neville, and he’s really good at it. He does what basketball players do with their backs towards the opponent and looking back at them and moving around. The bad thing about this is he is doing it with me. I have acquired so many bruises over the past couple of weeks and I know they’re from the pups. I am very knock-overable, so I’m trying to get them to stop being so aggressive with me, which is going…okay.

We’ve been casually working on them not jumping up on me when I’m standing or walking. It’s very hard trying to train Ollie with Nev there because they influence each other and a lot of times it’s not good influence. Ollie is much more stubborn and wants to do his own thing; Nev really spoiled me because he was a breeze. I wish Adam had continued his training using actual training methods and not just yelling like a psycho.

Ch-Ch-Ch-Changes!

We got a party going on here!! There are some aesthetic changes and new pages here for my new media class, which is a very interesting class about expanding one’s online presence and creating a website. If I mentioned all this before, I apologize. I already have my site, but I never had a WiP page or author page. Okay, this all seems really familiar…

Anyway, sadly, the pink font had to go due to being hard on the eyes, so I chose yellow and I don’t know if it’s better, as bad, or worse. It doesn’t bother me, but I read what I write in the WordPress editor in black and white. White is just too “blah,” so I can do a super pale yellow if I need to. If it’s hard to read, just drop me a comment!

I’ve named my second poetry collection, and I think it’s a catchy title! I also created the cover, which I really like except the title may be hard to read as well. Color me autistic, but somebody who followed me on Threads commented on my first poetry collection and asked if I minded telling my readers where I got my cover art (Canva, purchased from the artist, btw – which is awesome and an indie author’s dream). I said, “No, why would I mind that?” They didn’t answer me, so I don’t know what that was about. Maybe don’t ask if you don’t really want to know 🤷. I’ve been busy getting in trouble, which is a lot easier and more frequent when you don’t look autistic and your filter is no longer alive, so that’s been fun.

I begin my last term in a couple of weeks, and I have the same guy who (falsely) accused me practically every week of using AI. He was “reporting” me to the school, but since he was merely on an AI witch hunt, like a lot of the professors since AI became public, and I do my own work, nothing came of it except I don’t like him now. People can and do write one way in forums/discussions and another academically in papers and projects. Duh. I emailed my advisor and told him I really don’t care if I graduate if it means I have to take his class. I am already suffering from major college burnout, and I don’t know if I can tolerate eight weeks of him again.

Adam’s next classes are intermediate poetry workshop and context of writing. I didn’t like the context of writing one because it’s query letters and drafting an author bio, but it wasn’t too difficult. I had a crap teacher for the workshop but I had the teacher I liked for the advanced workshop after that, so I was cool. If it’s not noticeable, I hold grudges, even though I don’t mean to.

Invisible (Social) Disabilities in a Chronically Online World

As a society, online and in person, people from many countries are on a mission that I won’t get into, but the themes are unity, tolerance, and acceptance — unless you’re overweight, unattractive, disabled, or disagree with the popular narrative. As a whole, the disability angle seems to be improving except for those with invisible disabilities and/or disabilities that affect social and communication skills. Online, people get nasty (that seems to be the default now), and if you mention suffering from one of the socially-impaired disabilities, you’re accused of making excuses or outright lying. As an agoraphobic hermit, I’ll be referring to the online community.

In short, people don’t like being disagreed with or someone being objective. My PDA (pathological demand avoidance) and ODD causes me to be a devil’s advocate, and even suggesting a different view places me as the enemy to whomever I’m speaking with, and they respond with the typical name-calling and labels instead of engaging in actual discussion or, Heaven forbid, acknowledging a different point of view.

I’m neither liberal nor conservative, meninist nor feminist, and I couldn’t care less about someone’s sexual orientation or transgenderism. However, I argue both sides of the coin because of my PDA/ODD. Those arguments say nothing about my views, as I will not discuss my views on social media. Objectivity does not mean choosing a side, and people can certainly be in the middle on any societal issue.

Take abortion for example. Being in the medical field for almost 20 years, I know for a fact that some women use abortion as a form of birth control (many have admitted it to the doctors and medical staff). It’s not hyperbole or extremism; simply fact. It would probably be less of an issue with abortion pills, but surgical abortions pose a serious health risk to women and that risk gets higher with each abortion performed. So, when someone is 100% for abortions for any reason, it’s easy to argue against that validly. Likewise, I am a firm believer in staying out of women’s healthcare and uteri. When someone is 100% against abortions and cites their religious views as the reason, it’s easy to argue against that as well. And I will argue both at any given time because of that pesky defiance part. I strive to disrupt the echo chamber.

Online, none of the above is acceptable to 98% of people. Now, I don’t do this stuff on purpose to argue and be a contrarian; it’s part of my social disability. However, that doesn’t stop me from being labeled as some kind of -ist or -phobe or bigot; whatever buzzword of the day to make others feel superior. The ones doing such don’t know my views; they only know my valid arguments and what I want the online world to see, but that never matters, and it’s really annoying.

Adam gets and accepts it because he’s used to it, but does one really need to justify someone who can argue both sides and be objective? Is one’s fund of knowledge so small and conceit so large that they can’t take even reading a different perspective without lobbing assumptions and insults?

~*~Stormy Nights~*~

I feel the floor vibrate in time 

with the rolling thunder, 

like standing in the cab 

of an idling semi —

I don’t like it.  

I hop onto the bed with my Bernie.

He takes me in his arms, 

covers me in kisses — 

pauses to receive kisses to his nose.  

His breath smells like cat poop — 

his favorite snack.  

Lightning bathes the room in white — 

a flash photo of utter calm.  

There is talk of a severe thunderstorm — 

Alexa always knows these things.  

The bed vibrates —

lick, lick — smooch, smooch — snuggle, snuggle.  

It’s going to be a long night.

I wrote this poem while it was storming one night, of course. I have sensory processing issues with sound, among others, but I’m not a fan of lightning, either. Mom always thought it was weird that I hate thunder because the lightning is the stuff that can be dangerous, but I don’t choose disliking loud (or repetitive) noises! Before Adam moved into the bedroom, I would get on the bed with Ollie and we would cuddle while it stormed.

The Plight of the Pet Parent

Well, the novelty of my desk drawer has worn off for the cats, so I now have a cushy empty drawer with potting soil sprinkled in it. Oh, why is potting soil in it? Well, Phin (my blind boy) loves greenery and will go to the ends of the earth to find it and eat it, and I just got an African violet yesterday at Lowe’s. He hadn’t bothered it while I was awake, so I thought the leaves didn’t appeal to him. I was wrong. He knocked it off while eating it while I was asleep and it landed in the drawer. When I got up, he went over and got on the shelf and was trying to find it but I had tossed it. Meanwhile, Miss Willow stays on my desk all the time unless I open the window.

Their food and water are on my desk because of the dogs, so they hang around me or Phin lies on his dad. Phin is a little badass. He has always been such a brave little toaster, especially for being blind, and that hasn’t changed with the pups. He cautiously makes his way off the desk and just saunters over to the dogs’ water fountain and drinks out of it. Sometimes he runs into Neville’s legs or feet when Nev is sleeping on the floor, but he just corrects his trajectory a little and keeps going. When the pups sniff him, he has no problem smacking the crap out of their noses. It scares Ollie, which is hilarious, but he keeps on sniffing Phin and jerking back with each smack. I think cats’ smacks are the equivalent of Rocky’s punches the way that the pups react.

For being rather stern dog parents, the boys are huge babies! Adam chooses yelling over training, so he yells at Neville all the time, but when something scares him or I give him medicine or correct him, he runs to Adam and gets on his lap. A 120+ pound Lab crawls on his dad’s lap like a baby.

With Ollie, he gets his feelings hurt very easily (common for the breed), so when he gets in trouble or thinks he is in trouble, he comes over to get a hug and kisses. I may have mentioned it before, but I’ve kissed him on the nose since bringing him home and he loves it. He gets in front of me and nudges me with his nose until I kiss him. If he wants multiple kisses, he keeps nudging my nose. Sometimes he kisses me at the same time, which I do not appreciate. He is just the sweetest little thing. He’s also very floppy and likes being held like a baby even though he’s ~130 pounds. Since he’s so tall, we can only hold his upper body in our arms. He likes to get in front of me on the bed, sit down, and just trust fall into my arms. They are sweet boys but haven’t let me get much sleep!

One More for the Road

I am now at four works in progress and I’m beginning to think I am the problem 😏. I don’t think I have it in me to write a full-length fiction novel. I get bored and “stuck” very quickly and throw what I’m working on to the side so I can start something new. I mean, I never could read an RL Stine book without skipping to the last chapter, so why would I think I could write all the way through?

My “voice” is strongest and most authentic when I’m writing non-fiction. I have masked for so long that it’s hard to allow myself to come through, but I am learning to do that and it’s most evident in my poetry and new WiP. But even with poetry, I get feedback that I use a lot of classic and traditional words and phrases. I’m not totally sure what that means, but people agreed with the analysis, so it wasn’t just one person.

Anyway, for my advanced creative writing workshop, I have to write a “primary piece” that is not my normal genre (which is poetry). I chose non-fiction because I am most comfortable with that, and I started writing about my life. I’m about 2,000 words in and it’s already painful. I’ve been sitting here crying out of hurt and anger.

We Need to Talk About Luke

I briefly mentioned writing about Luke in one of my recent posts and then forgot all about it. Adam and I are on a wonderful new journey known as perimenopause, and why didn’t anyone tell me about this?! I call it Luke, aka Luke “Peri,” but it’s definitely not cute or sexy. So, this crap can start way before menopause (I’m not close to menopause) and last up to 15 years, from what I’ve read. And it hits like a ton of freakin’ bricks. I was fine and dandy one day with my minor aches and pains, and the next day, I can’t put my arms above my head, can’t turn my wrist, and I’m shooting eye lasers at anyone who looks at me, husband or child. WTH?

I know why Mom didn’t tell me about this and it’s not her fault. She had endometrial cancer and had to have a hysterectomy before Luke. My sister-in-law and aunt both had hysterectomies young, so I was completely in the dark. Thanks to Google, I discovered that so many women are uninformed as well, and that’s not cool. No one tells you Luke can start in your 30s even if you don’t reach menopause until your 50s! I made a FB status about it and several of my high school classmates are going through the same thing.

I’m showing my ignorance, but I thought menopause was your period stops, you get hot when others are cold or comfortable, maybe get a little moody here and there, and that’s it. That is not the case. I am in so much flippin’ pain from increased inflammation (I have rheumatoid arthritis like my dear ol’ mom), I experience PMS for, like, two weeks; I’ve gained 40 pounds without a proportionate change in my diet; and my legs and feet are so swollen it’s not funny. Why would we need to lose the ability to reproduce when all this happens? Who wants to have sex with someone going through all that? Why do women have to go through all this crap and men merely experience occasional wonky willies and leave their wives for convertibles and 25-year-olds? Something’s not adding up here. As an AuDHD extremely resistant to change, it’s not been great. Unfortunately, I can’t do hormone therapy because of my family’s heavy cancer history.

Per usual, Adam has been a gem about women’s issues. He’s always been sympathetic and attentive during my “time of the month,” and now he listens to me gripe and cry and complain about all the changes I’m experiencing and how it has blindsided me. He offers massages and cuddles and doesn’t get mad when I’m swinging through the moods. Given his severely abusive childhood and trash family, I honestly don’t know how he came to be so sweet and patient and have such a huge heart. I try to show him he doesn’t need to treat me like I’m going to break, then I proceed to break over an incorrect order or missing items or crappy food. The unmet expectations thing is a huge trigger for a meltdown. And noise! The sound of the boys drinking makes me murderous. Mom told everyone who would listen he was a Godsend for her and he has been the same for me. And he’s really cute to boot, so there’s that 😊😊.

First Day of School!

School is back in session! We had a week off, which is awesome because I am suffering from school burnout pretty badly. This term, I have a “new media” class and an advanced creative writing workshop. The new media is about writing using different media, mainly digital (online), from what I can tell. It’s a requirement for my English/creative writing major. The advanced creative writing workshop is the last workshop before graduating, and from what I can tell with it, I have to write in a different genre than my major concentration. My concentration is poetry, so I have to write something that’s not that.

I think I’m going with non-fiction because I’m eyeing writing a memoir. I have a second poetry collection and two fiction novels started, so I’m going to have another work in progress in progress 🤣🤣. I’ve been hesitant to declare I am writing a memoir because my ADHD has my memory in shreds and I’m honestly not that interesting. I think writing essays would suit me, but I really don’t understand what that means. I think of schoolwork when I think of essays, not full-on novels.

I did read a book in class by a popular essayist, Dave or Dan Sedaris (I’ll look him up in a minute), and that gave me some insight, but I don’t know if I could do it. I’m not interesting and don’t have a lot to say on multiple subjects even if they are stories from my life. Plus, my brain goes eighty different directions on a good day, so wrangling my thoughts for several essays sounds intimidating. Okay, the essayist is David Sedaris. I had to read Me Talk Pretty One Day, an intentional title that nonetheless drove me bonkers.

Adam has philosophy and literary theory this term, both classes I’ve taken. I chose the philosophy class as it’s an elective but it was kind of boring to me. It was an easy A, but didn’t make me really think about things like I assumed it would. Of course, when I am passionate about something and want to talk about it, I get all flustered and confuse myself so I can’t have coherent, rational conversations with people 😒. Most of my thoughts on certain subjects culminate in me fervently stating, “I hate people!,” and Adam’s like, “Yeah, I know. Me, too.” Real head-scratching debates take place in this house. One such subject that my husband and I agree on (we disagree on some things because we are autonomous) is inclusive, “tolerant” people being intolerant to intolerant people.

Now, of course, online that is met with hatred, ignorance, and name-calling. Obviously, I’m a bigot, racist, sexist, transphobe, homophobe, etc., because I think for myself and don’t have utopian delusions. You have the same values as me? That’s fine. You have differing values than me? That’s fine, too. People I come into contact with online cannot wrap their heads around this and it’s gross. I have a large family, and some are left, some are right, some are middle. We all get along. No, we don’t all agree on the big three (religion, abortion, sexuality) and that’s fine. We can feel how we want, vote how we want, and remain friendly and a family.

In terms of the online space, to say you are tolerant and inclusive, then boot people from online communities that have nothing to do with values or politics or whatever you want to call it, that’s just…not being tolerant and inclusive. Reddit is really bad about it, and there are people there who freely and loudly admit to creeping on users and banning those users if they visit or join communities the creepers don’t agree with. Like, WTH, people? That is not tolerant and that is certainly not inclusive. The people being kicked aren’t starting crap and politicizing anything; they’re actually the ones sticking to the sub’s topic, unlike the “tolerant” people on a power kick. I’m getting myself irritated so I will stop there.

I bought security cameras after our riding lawn mower was stolen from our driveway, which is a bad time to buy them, but I didn’t know they would be affordable and I didn’t know some losers would steal our mower that had a flat tire (I didn’t know Adam had left it in the driveway, either). They were $17 apiece and are HD and surprisingly nice cameras (Wyze). They alert me when people, pets, vehicles, or packages are detected and I was alerted twice yesterday that a pet was detected on the porch. My thought each time was it was Gandi and our flowerbed is a Pet Sematary, and I stopped myself from checking the footage both times. We now have Sprinkles, Merlin, and Gandi in our flowerbed in front of the driveway.