…And, Yes, I Raised My Left Hand

I used up all of my spoons before 9:30 a.m. today, and I didn’t even leave the house. Today is a day that will go down in infamy — in my head. I had my disability hearing this morning, and discovered I would crumple like a piece of tissue paper and confess to any crime I never committed if I ever set foot on a witness stand. Nobody would have to say a word to me, just look at me sternly. I would be Law & Order dun-done! It all started smoothly with me raising my left hand before finally switching to my right 🙄. Fortunately, they could not see me since the hearing was over the phone.

The judge asked me questions first, and that was nerve-wracking in itself. If I didn’t answer the question correctly because I didn’t understand what he was asking of me, he just repeated the question verbatim without rephrasing or any kind of explanation. That was very intimidating to me and made me feel stupid. When my lawyer questioned me, it was easier because he would rephrase or elaborate when I didn’t understand what he was asking of me.

Notably, and embarrassingly, my lawyer asked me if I was “bad at falling,” to which I replied that, no, I was good at falling, and he asked if I was saying I fall frequently or do not fall. After thinking on it, I understood what was being asked and felt very autistic in that moment. While Adam would understand my answer and clarify the question for me, I fear the judge thought I was being a smartass or pedantic, which I wasn’t. I simply did not feel I had the time to think on the answers, especially with how quickly the questions were being asked. This happened with several questions.

I got choked up on questions regarding Mom’s death, suicidal ideation, suicide attempts, and self-harm. I know it had to just kill Adam that he couldn’t comfort me since he wasn’t supposed to be in the same room at the time.

The social security people provided an expert to detail which jobs I would be able to do with my level of disabilities, and that was even more nerve-wracking for me because I could not refute any of the listed jobs, which the jobs were so obscure, and none could be done from home (I’m agoraphobic), and I certainly couldn’t do the ones she mentioned due to carpal tunnel and arthritic hands. There were only three available sedentary jobs they felt I could do, which were mail sorter, eyeglass lens polisher, and “electronics checker.” Where do they find these jobs?

She named even more jobs that were “light duty,” not sedentary, but when my lawyer cross-examined her and asked how many of those jobs could be done by someone with a history of falling who needs some assistance walking, she replied, “None.” He thought that was a promising answer.

Regardless, there are zero jobs that were listed that I could do in my home, on my own flexible schedule with as many breaks as I require. I spoke of my job I’ve been doing for 19 years and how difficult it is to do because of ADHD, and how it takes me an entire day to eke out two hours’ worth of work. I also mentioned how I am paid by production, meaning I get paid solely for what I produce even though I have to do research in my work frequently.

As mentioned, my lawyer felt confident about the hearing and told me so after I spoke with him after the hearing concluded. I told him how frustrating it was that I could not refute the jobs listed, and he understood my frustration but was pleased with how few job opportunities they came up with. There is an automatic appeal process that will take place if the verdict is not in my favor, but after that, it would go to a federal appeal court, which I really don’t want to do. Of course, I can file again in the future, but the process takes over two years each time. By that time, however, I would have more medical documentation and evidence to provide to the court. So, now, we wait.

Less Stress? Yes!!

Well…It has been a time, let me tell you. I don’t know what I’ve mentioned and what I haven’t, so I may repeat myself; just pretend it’s for emphasis. I got my cap, gown, honors cord, and diploma holder (frame?) from college, and I was pretty excited. The commencement I’m attending virtually is on December 14, but I have not registered for it because FAFSA is stupid. I consolidated my loans a few weeks or months ago and doing that created an overpayment of $1, which isn’t even an overpayment but some residual from the consolidation.

Note the “Excess Amount”

This could not happen. I can have $32,000 in student loans, but $32,001 is unacceptable? So, these geniuses stop my financial aid and throw me into forbearance and nobody thinks to inform me about it for two months. The only reason I found out is because Adam called the school, but we didn’t find out in the first phone call — oh, no, it took four phone calls with 2- and 3-hour hold times before we were told what was going on.

Fortunately, I am not kicked out of school (yet), and the school financial services people were very nice and empathetic, if a bit in the dark about my account. We are heading into the third month of dealing with this and last term’s aid has not shown up. We’re supposed to receive this term’s aid next week. So…yeah. I’m essentially late in paying for three of my classes through no fault of my own (unless you count me choosing to consolidate loans, then it is my fault) and I am supposed to graduate next month. The fat cherry on that sundae is my last class is a redo. I’m taking Seminar in American Literature instead of Seminar in Global Literature, which I took the last time (I switched to get away from the instructor) and I am stuck with the same instructor who accused me of using AI for my homework (I’m a writer; I don’t rely on AI). The stress has been great, literally and sarcastically.

Speaking of stress, I downloaded StressWatch for my Apple Watch, and it is pretty cool. It uses HRV (heart rate variability) to monitor stress levels and lets me know when I’m becoming stressed. It knows several minutes before I even start to experience symptoms. I also recently downloaded an app called Finch, which is supposed to help with ADHD and executive dysfunction. I shared it with Adam, and we are two little baby finches sending hugs and gratitude to each other while completing goals. It’s very cute.

In other news, I was prescribed an insulin pump and had to cancel my training for it three times because of transportation issues, and Adam and I just figured it out ourselves. Adam reads the book and shows and tells me what to do because I can’t remember what I read and get stuff confused. It was very overwhelming at first, but I’m slowly getting the hang of it. That’s not counting me wasting five infusion sets because I forgot to remove the needle cover for Every. Single. One. I had a mini meltdown and threw one of them away too hard for Adam’s liking, so he came over and put the sixth one on me and it took him, like, five seconds to do.

My amoxapine is helping with my productivity at work, but not my memory and executive dysfunction. I can see why since it’s not a stimulant, but I was hoping. The ADHD has worsened so much since Mom died — either that or she deftly handled my limitations and didn’t make them feel like limitations, which she totally did with my autism. I could feel and think I am being normal (for me) because she had my back, and I just flew through life none the wiser until I got evaluated after she died.

I’m Published! Grab Your Copy!!

Well, after a big snafu, my first poetry collection, In the Garden of Remorse, is available on Amazon! I accidentally published it while trying to order a proof copy 😫. A dear friend from California purchased the version with some formatting errors, but he said he would treasure it, warts and all. All versions are available right now, including Kindle Unlimited!

I did not know independent authors still got screwed on the royalties. I had to price my paperback to a ridiculous price (especially for new authors) just to get a little over $5 per sale. I think I get around $3 per sale for the ebook. That would be fine if I had a following or could do decent marketing. No one follows me or cares what I have to say. Oh, well. I’m not doing it for the money, but it would be a great perk. Due to unpopular demand, I’ve decreased all prices 😒.

I hope I make a sale that isn’t family or friends 😂. I need a hype man!

She Thinks I’m Cute!!

I got last week’s homework back; two free verse poems, and inserting line breaks in an unknown poem that had the formatting stripped, the latter of which included my all-over-the-place “reflection.” My professor said my reflection was exemplary 😂😂. She also said one of my poems, In the Garden of Remorse, was beautiful, which surprised me a bit because it was rather dark. She once again mentioned experimenting with structure and punctuation, which I don’t completely grasp yet. I have started experimenting with em dashes (long hyphens), something Emily Dickinson was very fond of, and I’m not even a fan of her work. 

Poems with weird spacing and punctuation really throw me off, which I feel is because of autism, ADHD, or a combination of both. I really like the movie No Country for Old Men and was excited to read the book when I found out the movie was based on the book, but the author is not a fan of commas or quotation marks. I could not discern when people were speaking, and the lack of comma usage was so annoying that I stopped reading the book. 

Another author did the same thing with quotation marks (what is up with that?) and I had to stop reading it which really stunk because I was enjoying the book aside from getting completely confused. Oh, it was 13 Reasons Why. I never watched the show so I’m in the dark about why the girl killed herself. Anyway, with poems, it really takes me out of what I’m reading when I am presented with weird, artsy formatting. 

I forgot to write about what Neville did! I got rid of most of my stuffed animals, which I really regret now, but I kept a few that are important to me. I love pandas and tigers, so I have some of each. I dog-proofed the living room before Neville got here and it’s nearly empty, but I have some stuffed animals in there because the room’s theme is safari and pandas (weird combination, I know). I have some pandas on the entertainment center since removing the TV. I take so long to tell stories. 

Nev likes to grab random things and bring them into the room and chew on them. He has plenty of chew toys and bones, but for some reason they aren’t preferable. He hunts for things, and I know he knows he is not supposed to have what he gets. He’s already destroyed two of my wireless mouses and the cord to my Dyson. He doesn’t seem interested in Adam’s stuff. 

So, he comes into the bedroom carrying one of my pandas and I take it from him and put it and the other ones on the entertainment center on top of the entertainment center so he can’t reach them. I see my brother’s slippers on the entertainment center, so I scoot those back against the back so he can’t reach them. Then, I return to work. Nev goes in and out of the bedroom a few times, then he lies down behind my chair and is quiet, which is when I know to look at him. He is lying there with one of Bub’s slippers just going to town on it, ripping the top to pieces. 

I can’t remember if I yelled at him or not but Adam comes into the living room where I’m standing and trying not to cry. I get very still and quiet when I’m angry or upset. I attempt to go back into the bedroom (I hate showing emotions around people) but Adam stops me and pulls me into his arms and I just lose it. I’ve had those slippers in the living room since Bub forgot them here and I like them being there so I can see them. I made it a point to move them out of the way so nothing would happen to them and they are the very next thing Neville goes after. I have my brother’s slippers and a pair of sunglasses, which he also forgot here, and that’s it. I’m not surrounded by his belongings like I am with Mom’s. 

Neville is still here, of course, but I wouldn’t have anything to do with him for several days, and he stayed in the room with Adam. He is supposed to be helping me, not making things worse!