Look What You Made Me Do

I restarted school this week, and jumped into full time, because…why not? Being a glutton for punishment, I chose Studies in Poetry and Intro to Philosophy. I like writing poetry, but I don’t like reading poetry, especially ones written by “the greats.” Why are they great? Emily Dickinson was a miserable, lovelorn woman who left her room only for social occasions (which is more than I can say for myself). I don’t know what she is writing about at any time. Robert Frost…I’m not sure I’ve read any of his work. The same goes for Walt Whitman. I think of chocolate when I think of Whitman.

I know the names but that is about it. I do like Poe’s work, but I don’t read it much because of the language barrier. I need things spelled out for me 95% of the time. I’m not a fan of non-rhyming poetry, which is apparently what my class is going to focus on. How is that a poem and not an essay or stream of consciousness? I can string words together as I think of them but I’m certainly not a poet. I was very drawn to Jewel’s poetry, and I don’t think she received the attention and notoriety that she deserved. I don’t know why I liked her stuff, but it’s possible that it was because she was new on the scene and I adored her debut album. I think her work is the only thing I have liked and related to that did not rhyme.

I’m pretty much kicking myself over choosing philosophy as an elective. I don’t understand a lot of things, philosophy included. I do have questions about everything and wonder about the same things philosophers wonder about, but I never know any answers. I ask Adam questions all the time about life and events and human behavior (the latter is more a sociology thing) but those questions stay between us for the most part. When I ask someone on the outside something, I get blank looks or laughter. Adam and Mom both get/got me and how my mind works. I hate looking and feeling stupid, which I’m sure most people do, so I keep things to myself or between my husband and me.

I am a junior in college now and am on my fourth major. I was doing great in school with a 4.0 GPA until my brother died unexpectedly a couple of weeks into a semester. I could not deal with his death, work, and school; it was just too much. Foolishly, I just left the classes without dropping them officially or talking to my student advisor or professors. Because of that dumb move, I received Fs for those classes instead of incompletes or withdrawals. I tried returning to school before I got my medications adjusted and ended up dropping out again because I did not like the classes I was taking and I didn’t like the major I switched to (marketing). More Fs. I’ve ruined my GPA by doing that, which I really hate and regret. It’s a B average, but I was previously making the Dean’s list every term.

I’ve always loved reading and writing, and everyone thought I would become an author, but I’ve not had the desire or motivation to write for years. I don’t know what happened, but it’s just not there. I have nothing simmering in my brain; no poems, no stories, no essays…nada. I am hoping the poetry class will ignite something since I’ve wanted to be an author since I was very, very young.

Not to say that my head is empty. I’m always thinking of things constantly, even when I don’t want to, like when trying to sleep or read or figure something out. It’s terrible thinking about stuff when I’m trying to read or do homework or work work! I just space out and completely gloss over what I’m reading or watching and I have to back up or stay lost.

People have no idea what it’s like to have ADHD, and for them to be so dismissive of it, to the point of some stating it doesn’t exist, is infuriating to me. It is not a lack of willpower and/or discipline; it is a very real disorder with very real chemical imbalances, and my husband could certainly attest to it. Oddly enough, I have the inattentive type and my brother had the hyperactivity type with some inattentiveness thrown in for good measure. We must have been hell on Mom growing up!

You’re Getting on My Last Nerve!

Gah!! It finally happened. I broke my very last Microsoft Natural Ergonomic 4000 keyboard. Definitely Microsoft’s best ergonomic keyboard, and loved by many, especially those in my line of work, which is how I found out about it nearly 20 years ago. Like most out-of-touch companies, i.e., the majority of them, Microsoft took something that worked and was well-loved and made it disappear. Used ones can be found online for $400 to $700 (new ones were originally $76; got down to $39) God Bless Greed 🙄🙄. I’ve owned way more than my fair share of the 4000s because I kept breaking them. They are 100% not waterproof or liquid resistant, btw.

I bought two replacement keyboards a while back, which are the “upgraded” Microsoft ergonomic keyboards, hoping I wouldn’t have to use them. It is awful to type on. The only thing I like about it is the emoji key they added. They stuck a stupid Office key by the Alt key, and it brings up Office 365, which I can’t even use for work as I have to have Office 2019/non-subscription versions. This new addition made the Alt key smaller, which I use for work all the time, and I keep hitting that darn Office key 😡😡. Adam figured out how to disable it so Office doesn’t pop up each time, but I am still hitting the key. I’m slowly adding things in my text expander so the stupid key works like the Alt key. The amazing reverse tilt that made the 4000 awesome is minimal on the new one, so I added little rubber pads to elevate it. Every company keeps making the tilt in the back and it’s not good for your wrists because they are supposed to be straight when typing, not with your knuckles pointing toward your chest!! Do better, companies!

This whole significant change has been very hard on me, and I have developed a new, fun symptom of stress and overload over the past few weeks. Instead of sore, tense shoulders, I now get occipital neuralgia flares, which are super painful. It’s nerve pain at the base of the skull that basically follows the hairline up over the ears and into the temples. I tried to describe the location to Adam as where the cotton goes when getting a perm, but he had no idea what I was talking about. It’s a shooting, shocking pain and not an ache, and the shooting part happens when I turn my head too far/fast or bend over with my head pointing down. I always get a bit worried when I have unusual head pain since I have Dandy Walker and hydrocephalus is common with that. I’ve had some CT scans and have been told there is some fluid but not enough for a shunt. I haven’t had a head CT in a couple of years, though.

I was in the kitchen the other day and thought I was having a stroke. Adam was sleeping, and all of a sudden while I was getting something out of the cupboard above my head, my neck started hurting on either side of my trachea. I grabbed my neck with one hand like the bad guys do in the movies when they pick someone up by the neck, and squeezing my neck helped, but it happened twice more right after it briefly went away. I googled the symptom and pretty much came up with tension and stress. I’ve been having trouble breathing for the past few weeks, and I am wondering if the new non-stimulant ADHD medications are causing increased stress and anxiety. I’m not lacking in that department; I don’t need more. I was on Strattera and then switched to Intuniv. Otherwise, I’m hunky dory.

The Last Tunnel on the Right

I had an EMG on my arms yesterday and I didn’t really like the people who saw me. The woman who shocked me was all right; not exactly pleasant, but not rude, either. The doctor came in and was very cold and to the point, which makes me uncomfortable. He told me he was going to insert “just the tip” and record it or listen or whatever, and before I could ask, “The tip of what?”, he started poking me with a needle up and down my arms. It did not feel good. We could see and hear my nerves talking on the computer, which was pretty cool. Some spots he poked were loud and some were quiet. Afterward, he typed some stuff in a pre-drafted letter that was on the computer screen and said he would send it to my doctor, then left. I don’t know which doctor he’s sending it to; I don’t know what the letter said; I don’t know what the results were.

In the hallway, I googled him, and his reviews were less than stellar, as in 1 star. He allegedly has a bad habit of not communicating with his patients 😒. Adam, who read over the doctor’s shoulder while he was typing (yay for being nosy!), said he mentioned median nerve neuropathy, which isn’t surprising. The doctor reminded me of Mom’s first GYN oncologist, whom we totally should have sued for malpractice and I hate that we didn’t. By the time she switched doctors, it was too late for her. Her second doctor said he always does at least one round of chemo after any cancer-removing surgery.

I already knew I have carpal tunnel syndrome (CTS) because of the symptoms and how much I type and work at the computer, plus they told me; I just need some treatment for the pain since it’s been getting worse. I have a hard time braiding my hair now because of my hands cramping up, but I do have very long hair. Fortunately, the CTS is not too bad yet. I have tiny bone fragments at the base of my thumb and degenerative changes to the outer wrist of my right hand, which the other orthopedic guy actually told me before setting up the EMG appointment. He, I liked, except for when he hurt me.

“Looking” at the door

For some reason, Phin, my little boy who can’t see, wants to be in the bathroom with Adam or me every chance he gets. Whenever we stand up to go somewhere, he gets all excited and starts pinballing toward the bathroom; running into objects, cabinets, boxes, whatever is on or near the floor. A lot of the time, he gets confused and goes to the utility room and both spare rooms before finally making it to the bathroom. Once in the bathroom, he gets up on the sink to get pets and/or get a drink from the faucet. He gets so excited and rattlesnakes his tail, which is just adorable. He doesn’t always get a drink, so that’s not his primary reason for going in there, but we don’t know what is. I thought he would not like the bathroom since it’s the one where he lost his little teeth while trying to jump up on the sink. Before I started using Mom’s bathroom exclusively, he would go to the main(?) bathroom with me and I would put him up on the sink since he’s afraid of jumping up there after his teeth accident. If he made it to the bathroom before me, he would jump onto the toilet seat, then up on the sink and wait for me.

A couple years ago, I bought a bidet seat and had it in the main bathroom. This seat is fairly big and it slopes downward, which I didn’t even think about when I bought it. When I went to the bathroom, Phin tried jumping up on the seat without knowing it was different and slid back onto the floor. He tried it a couple of times and then gave up. Adam spent a good chunk of time one day teaching Phin to jump onto the side of the tub, get on the toilet tank, walk across it, then get onto the sink. This was the cutest thing ever, with Adam crouching on the floor and Phin standing with his front paws on the tub looking toward him. The bidet seat was in that bathroom for a couple of months, then Adam put it in Mom’s bathroom for me, where it’s been since. However, Phin still gets onto the sink in the main bathroom by way of the tub and toilet tank even though I’ve helped him feel that the regular toilet seat was back.

One time while I was showering in Mom’s bathroom, I kept hearing this clunk, clunk, clunk, so I opened the shower door and there was Phin on the toilet tank, thinking the sink was beside the toilet like in the other bathroom, which it is not. He never spent much time in Mom’s bathroom since Adam and I never used it. He was trying to get down off the tank and kept rocking the lid. I don’t know how he managed to get on the tank with the bidet seat there. He breaks my heart every day but I don’t know what else I can do for him. I don’t get how he can remember how to get on the sink from the tub, which he hasn’t been doing long, but not remember his way through the house. He has been here since he was six weeks old.

Last night, instead of climbing from the hamper onto my desk in front of my TV/monitor, he got mixed up and went behind the TV and fell off the desk 😞. A week or so ago, Gandi broke the glass of one of my 8″ x 10″ photo collages and I had the collage lying on the kitchen bar with one side hanging slightly off the bar as it was wider than the bar itself. Phin was trying to get to me and stepped on the part of the collage that was hanging off and fell off the bar into metal folding chairs, hitting the garbage can and a roasting pan that was to be thrown away 😿😿. I don’t know how to protect him more.

My little furry heart 💗

Bookworm, Dood-Li-Doo

List three books that have had an impact on you. Why?

I’m sure I can think of three, most likely more, but I wanted to do this prompt because of one in particular. I’m an avid reader with severe ADHD, so I don’t remember much about a book upon finishing it, sadly. The good side of that is most books are always new to me! Speaking of books, feel free to follow or friend me on Goodreads! I’m an active logger and rater, but not big on reviews because of my terrible memory.

Because I want to, I’ll be listing my three picks counting down.

The Kite Runner – Khaled Hosseini

I read The Kite Runner years and years ago, probably around the time it came out, and I still think of it often. It and A Thousand Splendid Suns, another book by the same author, really jolted me out of my young adult and mystery/thriller/horror genres rut and introduced me to the terribly-named (assigned?), general “fiction” genre. I mean, all fiction is fiction, so why not give wonderful reads a worthy subgenre? That vague categorization makes it hard for me to find books similar to Hosseini’s. “Contemporary” is just as confusing because, after time, those books are no longer considered to be contemporary. But I digress.

Hosseini is a phenomenal writer and sure knows how to evoke feelings. I cried, I gasped, I laughed, I cried some more, and actually took a few days off reading after finishing this book, which is something I never do. This book made me think of how others live in other parts of the world and how different we all are, which is a great thing but can also be so disheartening and feel so unfair. Since reading The Kite Runner, I’ve not thought of theft in the same way.

My favorite quote (paraphrased) from The Kite Runner is:

“…there is only one sin, only one. And that is theft. Every other sin is a variation of theft.

“Do you understand that?”

“No, Baba jan,” I said, desperately wishing I did. I didn’t want to disappoint him again.

. . .

“When you kill a man, you steal a life,” Baba said. “You steal his wife’s right to a husband, rob his children of a father. When you tell a lie, you steal someone’s right to the truth. When you cheat, you steal the right to fairness. Do you see?”

Hosseini, K. (2003). The kite runner. Bloomsbury Publishing PLC.

The Boy in the Striped Pyjamas – John Boyne

Another book that stays rent-free in my mind is The Boy in the Striped Pyjamas. This story takes place in Nazi Germany and is about a young German boy who befriends a frail Polish boy who is always in striped pajamas. The two strike up a friendship while on opposite sides of a fence. I flew through this book and was ugly crying by the end. When the movie came out, I immediately rented it and watched it with my mom and Adam, though I must say the book made a bigger impact on me than the movie, which is almost always the case. The Boy in the Striped Pyjamas is a wonderful read but it is a hard one.

My favorite quotes from The Boy in the Striped Pyjamas are:

“And then the room went very dark and somehow, despite the chaos that followed, Bruno found that he was still holding Shmuel’s hand in his own and nothing in the world would have persuaded him to let it go.”

“And who decided which people wore the striped pajamas and which people wore the uniforms?”

Boyne, J. (2006). The boy in the striped pyjamas.

Lastly, or firstly, I guess, the book that has made the biggest impact on me.

A Monster Calls – Patrick Ness

I watched A Monster Calls before knowing it was based on a book. I went in blind, merely choosing it because it sounded like a horror movie and because Liam Neeson was in it. (If this reads familiar, I’ve mentioned it before in another post.) Whenever I find out a book or movie I like has a book or movie, I must read or watch it, depending on if I saw the movie first or read the book first, obviously. I don’t want to say too much about these books so I won’t spoil anything, but sometimes that is difficult.

A Monster Calls is considered a children’s/young adult book but I was in my early 30s when I saw the movie and then read the book. The story, which was inspired by Siobhan Dowd, is about a young boy, Conor, whose mother is dying from cancer and he keeps having a recurring dream involving a tree “monster.” I quite enjoyed Patrick Ness’ storytelling and could very much relate to Conor and his situation. Like the movie, the book had me crying my eyes out and finally feeling heard and seen. I own the book and the movie but I don’t think I could reread or rewatch for a very, very long time, if ever.

My favorite quotes from A Monster Calls are:

“You really aren’t afraid, are you?”

“No,” Conor said. “Not of you, anyway.”

. . .

“I’ve known forever she wasn’t going to make it, almost from the beginning. She said she was getting better because that’s what I wanted to hear. And I believed her. Except I didn’t.”

Ness, Patrick (2011). A Monster Calls.

With that, I’m done 😭😭.

Worry About Yourself; I’ve Got Everything Else Covered

Nitpicky. Controlling. OCD. Fussy. Particular. Unreasonable. High maintenance. These are some of the words that have been used to describe me. That’s fair, for the most part. I don’t have OCD. I’m not high maintenance, unless one counts the limitations from my disorders and illnesses. All the other descriptors are the result of being undiagnosed well into adulthood and trying to cope and maintain some semblance of control in my life and situations.

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If I get too stressed over something, I immediately start cleaning and straightening items. Adam usually tries to stop me so he can comfort me, but the comfort comes from organizing. Order is something I can physically control and, frankly, keeps me from dealing with overwhelming emotions, which is something I don’t know how to do or even if I’m capable, especially pertaining to sadness, anger, and stress. Keeping things just so helps keep my world calmer, and if I neglect that, it causes stress, which has been affecting me physically more and more.

My current hyperfixation is books. Logic dictates, in my opinion, since hyperfixation (“special interests”) is an autism thing, being AuDHD mucks that up into fixating on something for a length of time, then switching to something else with the same passion and intensity. Mom tried to keep up with my fixations, so I’ve acquired books, pandas, unicorns, and tigers, to name a few, over the years. I have a pink dancing turtle and a talking Squirt from Finding Nemo from my cute turtles phase. With Adam, I’ve obsessed over Bob’s Burgers, Taylor Swift, Pon & Zi, music, crypto, magic mushrooms, and on.

For reasons unknown to me, I decided to try Apple Books/iBooks instead of the Kindle app and discovered I like Apple Books better, so I was going to transfer my 500+ books from Amazon to Apple. Well, I couldn’t. When you buy an e-book on Amazon, you don’t own that book, unlike buying paper- and hardback books. Amazon is essentially a paid library for digital media, like Vudu and other digital goods companies. If Amazon got a bug up their butt and deleted my account, like they have in the recent past, my books would be gone and I certainly wouldn’t be reimbursed. This didn’t sit well with me, and being told I could not do something, specifically that I could not own something I paid for, only fueled my little AuDHD PDA self.

For the past few days, I have spent hours downloading my books onto the computer, converting them into .epub files, backing them up on my external hard drive, and transferring copies to my phone via iTunes. This went well for most of the books, but a few were totally messed up, and of course those are the ones my brain focuses on and bothers me incessantly about. I remove all of them from the phone, fix the metadata and covers for each one on Calibre, and send them back to my phone. A few more are corrected, but there are still some problems. I Yahoogle for help, as does Adam since this is really upsetting me, and I try everything we find.

The same thing happens. All the authors are listed first name, last name in the app, but alphabetically sorted by the last name, which is correct. Except for two authors. One is listed last name, first name and his 23 books are split somehow. For the other, her initials are MZ and she is sorted under M instead of Z, although her name is in the correct order (FN, LN).

Very funny, Apple.

After being miserable for the past week and not getting the results that I wanted, I’m standing at the bed hugging Adam and venting about the apps, and my sweet, amazing, well-meaning husband tells me I should not worry about it because it’s just a small thing. Now, I love this man to pieces, and I know I shouldn’t stress and fret over something so small, but it’s not by choice. I don’t do this because I’m bored or want attention or I’m desperate for some internal drama and turmoil in my life. I can’t help it. I tried to “deal” with Hurricane MIL and nearly had a mental break from that.

On top of my ever-changing, fleeting interests, my lifelong solid obsession is English/language. I’m average in every other subject and above-average in language, which was included in my psych/autism assessment, but I’ve known that since I was little. I was always in gifted reading/English classes, and that was my highest-scoring subject on my ACTs. I had this terrible-paying general transcription job once, and the company’s policy was to type what was said, of course, but that included spelling words how the dictator spelled them if they happened to spell them out, including medications. Most people don’t know how to spell medications correctly because the spelling and formatting can get pretty crazy. I always spelled the drugs correctly and was ready to defend my choice to the death if necessary. I was with one company where this doctor would always say “gamipectin” and proceed to spell it: G-A-B-A-P-E-N-T-I-N. Gabapentin was the correct medication, so I don’t know where in the heck she came up with gamipectin. I correct emails when replying to them. I correct FB posts if I’m reposting. I quickly stopped reading No Country for Old Men because Cormac McCarthy refuses to use quotations when people are speaking, which could very well be a sign of the devil. That really stinks because I loved that movie and figure his books are pretty good.

I have no idea where I’ve been or am going with any of this post. I applaud your dedication (boredom?) if you have made it this far 😊👍.

Adam made me modified tequila (what we called it growing up). Eh, maybe “barebones tequila” would be more accurate; zucchini, meat sauce, and lots of mozzarella cheese 😋. I think ground chuck is more expensive than ground beef because the farmers and butchers have a hard time finding boy cows who are named Chuck. Adam said that’s a possibility but never gave a definitive answer.

Paint It, Black

I think I’m done painting the bathroom, but that’s not set in stone. I’ve learned two things since starting this project: I want to (and usually do) paint anything I get paint on, and high-gloss black paint shows everything, including brush and roller strokes, hair, lint, dust, etc., and Heaven forbid I miss adding a second coat! Places that need touched up are easily seen, i.e., glaringly obvious with a flashlight. I hop around from place to place so much that there is no rhyme or reason to how much paint is on each wall so I just have to spot check. I wish my Concerta worked for me. I couldn’t work with the painter’s tape today because it wasn’t doing what I wanted it to, so I painted the sink.

Probably not the best idea.

I put the shelf that was at the bottom of the mirror over on the wall to the left, and I really like it there. It was in the way above the sink, and it fits perfectly on the wall! Unfortunately, first, I asked Adam to put it a little high so I wouldn’t hit my head on it, but after it was up, I couldn’t see over it and couldn’t really reach things, so I took it down and moved it lower all by myself (yay!). The holes are kind of visible on the batten strip but it’s cool.

Started out with the shelf a few inches higher but I couldn’t see on it.
Shelf’s previous place, right under the mirror frame.

I’ve had the shower done for a while, and while I love it being black, it shows soap scum so bad even though I spray it down after every shower. All the black has made the bathroom really dark, but it looks really cool when I have the smart lights on in color. I need to get some black silicone for around the shower frame so it’s not so ugly.

The clear silicone on the shower does not hold paint!

I listen to music via a Bluetooth speaker while taking a shower, so I stuck a piece of metal by the shower door so I can put my phone there and adjust the volume or change the song while in the shower. It works great and is hardly visible. I’m saving scrap metal so I can put it other places. I added a piece on the bedroom wall in case I go to bed with the phone. I always lose the phone in the bed.

Metal is in the middle of the picture. See the ugly silicone to the left?

I fear it’s a bit autismal of me, but nearly all of my posts are categorized/tagged as Autism because I’m autistic every day so of course each post is about autism. I hope it’s not misleading for anyone. I tend to take things literally a lot and most of the time people think I’m being sarcastic or obtuse when being sincere. My husband is getting better at clarifying when asking me questions and I answer in a literal way.

Oh, I haven’t talked about the closet!! I’m turning Mom’s closet into a sensory room, as previously mentioned, which is 5 feet, 8 inches inches wide by 12 or 14 feet long. I’m planning on getting this all-satin pink blanket from Amazon since “rubbing silky” is one of my stims, and I found the reversible sequin fabric on Amazon, too, which I want to get some of to put on the wall. I’m also going to put my alpaca pillow cover on the wall, as I love anything soft. I’ve had the pillow for years but can’t keep it out because the cats suckle on it and pull the fur off.

My super-soft alpaca pillow

One bad thing about the closet is there are no vents in there and the light fixture cannot accommodate a ceiling fan. Plus, there are no outlets, so I’ll need to get surge protector extension cords so I can plug things in. I saw a cool fiber optic light thingy on Amazon that I want. I always wait until there are good deals, so furnishing the closet will take a while. I would love to get a Drew Chair from Walmart but it’s $300. It would make an awesome reading chair ☺️. When I share something I like with Adam, he will say something like, “That would be good for your sensory room,” which makes me feel so heard and love him even more. He helps me think of things to put in the room because I rarely know when I’m stimming and he says, “You do [this or that] when you’re tired or overwhelmed,” and I don’t even realize it. Mom told me once that I rub the carpet when I’m tired and lying on the floor. I’ve done that since I was a kid and never realized it’s something I do when I’m sleepy. I tend to rub a lot of various surfaces and items to soothe myself.

I can’t start painting the closet until I patch the multiple holes left in the wall from the wire racks. There are a lot of them. I’m going to take one rack and have Adam cut it into several pieces and put them on the wall as shelves instead of racks. They are white, so they need to be painted as well. The spare room is now one big closet, but I’m cool with that since absolutely no one visits, let alone stays the night. I could probably squeeze the bed back in there, but what’s the point?

Check Out the Brain on Her!

I was born with Dandy Walker syndrome, which is a malformation in the back of the brain near the brainstem. The malformation occurs in the part of the brain (the cerebellum, fourth ventricle) that controls balance, coordination, fine motor skills, vision, and cognitive thinking. While pregnant with me, Mom was simply told that part of my brain didn’t develop and that was it. Granted, DWS isn’t common, so a lot of doctors, especially back then, hadn’t heard of it.

Now, more and more doctors and medical staff I’ve seen are at least familiar with it. One doctor even said, “So, you’re aware DWS affects your liver and kidneys?” Huh? Yeah…sure, I know. (Nope. I didn’t know.) I guess that explains the hydronephrosis, nonalcoholic liver cirrhosis, and diabetes type 1.5, the latter two of which are autoimmune diseases.

I didn’t walk until I was 2, and I was in physical therapy to help with that, but I don’t remember it. We didn’t learn I had DWS until I was 17 and my pediatrician ordered a head CT scan to see why I was having headaches all the time. Fortunately, I only have a small amount of hydrocephalus, so I don’t require a VP shunt.

I also had crossed eyes, which were surgically corrected at 18 months old, and a strawberry birthmark – a hemangioma – up from my forehead a little past the start of my hairline. My brother took care of my birthmark one night when he dropped a toy stove from the top bunkbed onto my head, which I had poked out from my bunkbed to ask him what he had said. He had, in fact, told me to watch out because he was dropping the toy from his bed and he didn’t want to hit me with it. I find this hilarious; even more so when he would tell the story. I don’t remember that, either, but I was under 5 at the time.

So, all of that to say, I have some limitations. With DWS and AuDHD, I think differently and perceive things differently and I have some problems with critical thinking, and my depth perception isn’t the greatest. I also have diplopia, which is double vision. I’ve had 3 eye surgeries and the surgeon informed me that it’s my brain mucking things up because they can’t get my eyes any straighter than they are. I must sound like a monster 😂.

My husband, Adam, didn’t know any of the above when we met in high school or when we started dating 9 years later, as my medical diagnoses are not something I openly talk about. My family is very open with each other about their health issues except when they pertain to one’s mental state, which is odd because depression and bipolar are big on the maternal side of my family. Mom’s explanation for my personality and behavior was, “Oh, that’s just Cari,” and family’s like, “Oh, okay.” I love that my family is so accepting.

My Breakdown Led to a Breakthrough

I finally got around to asking my husband to go to his brother’s for a week, and it went as expected. He got upset and tried to spend one day ignoring me so he wouldn’t bother me, but that was awkward and annoying. Things came to a head when I decided to do something that I had been asking him to do for months, which pissed me off because I don’t ask him to do much since I’m pretty stubborn and determined when I make up my mind to do something and I work at it tirelessly before admitting defeat. He decided to go to his sister’s since his brother lives a couple of hours away and his sister is about five minutes away.

Best. Thing. Ever.

For the first time in years, I had the house to myself. No annoying phone noises. No disgusting smell of way-too-strong coffee. Nothing being put away wherever. It was bliss. I work worked. I house worked. I got hurt a few times, which is totally okay to me, although I could have gone without getting both hands full of broken fiberglass. My body started relaxing, so I wasn’t in constant pain like I had been for months. I could get deep breaths. Obviously, I don’t handle stress well. My husband came by and took the week’s trash out but I was sleeping. We talked daily via text, and since I have issues communicating how I feel and what I want or need, I invited him to read my blog, which he did.

I think he finally started to understand what I’ve been going through and how stressed I have been. He told his mom not to do the dishes anymore, and he changed her phone settings so it’s not making a noise for every notification. I sent him some autism websites, one focusing on meltdowns, which he found informative and helpful. Most of the time, I can’t/won’t talk to him about my ASD issues (symptoms?) and struggles without feeling extreme shame and embarrassment and major impostor syndrome.

Somewhere in the midst of my week of solitude, I decided to begin the keto diet, and I want to convert Mom’s closet into a sensory room. I am excited about both projects, although I am having a bit of trouble with each of them. More on those two topics later!

She’s an Impostah!

I’m unpacking and learning so much about myself and “my” autism that it would be nearly impossible to not suffer from imposter syndrome. For the uninitiated, imposter syndrome is when “an individual doubts their skills, talents, or accomplishments and has a persistent internalized fear of being exposed as a fraud.” It’s most common in those who are insecure and have low self-esteem, which isn’t surprising.

The perfect example presented itself today. One of my higher-ups and I were on the phone talking about new accounts (point for talking on the phone!), which included a lot of new information and instructions – of course, I zoned out more than once – and before hanging up, she wanted to know if I was interested in doing QA (quality assurance) for all accounts.

Now, I’m good at my job, as most of it is spelling/grammar and medical stuff. I consistently get 100% accuracy at both companies I’m contracted with, and I’ve been in the field since 2006. However, every time I receive my QA emails, I am 100% certain that QA just missed my mistakes and that is why I got good results. It’s merely fact for me now.

I’ve done QA before with another company several years ago, but with so many hospitals and healthcare facilities outsourcing our medical records to India, accounts are harder to find, and if you screw up on their sometimes-ridiculous account specifics, they have no issue going to another company. As QA, I would have every account under me including the new one. Since I work nights, I would be the only QA’er available. No pressure, right?

Anyway, my post wasn’t supposed to be about work today. I’ve been sharing ASD information with my husband to help explain myself and actions, and he’s been so sweet and receptive, but I feel like I am just making excuses for my behavior and want a pass to do this or that. Meltdowns are one thing I feel like that about. I’ve had them forever but they were always labeled as temper tantrums, pouting, bipolar (which I don’t have), and acting immaturely.

When I get overwhelmed, I get extremely irritable and want to retreat immediately. If I’m doing something and not getting the expected results, I get physical with whatever I’m doing. Like, if I can’t get medicine open and have tried for a while, I’ll chuck it across the room. I’ll hit things, be aggressive with things, and so on. I mask a lot during these meltdowns because they upset my husband. Holding back results in me shaking, not speaking, and crying out of anger/frustration. I think that’s a big reason I finally broke and requested a week to myself. When I don’t throw something or hit something and hold it in, I cry. Sometimes I do both. I never, ever hit people or animals, so there’s that.

Bloop, Bloop, Bloop

It was never a secret that my brother had undiagnosed ADHD, hyperactive type. He couldn’t sit still and was always working on something, tearing something apart, or fidgeting endlessly. School was difficult for both of us, but it wasn’t common to be treated for mental health when we were children.

After I requested a psych eval and was diagnosed with autism and ADHD well into adulthood (after Mom died), things started making sense and falling into place. Sure, I could sit and read book after book, but once I finished a book, I couldn’t tell you a thing about it, even the ending. I can say I liked the book but not why or what happened.

The trouble with having AuDHD (autism with ADHD) is I crave routine, yet routine can be terribly boring. I like to think of it as controlled chaos. My space can look like a hurricane blew through, but if you want to know where something is, I can most likely tell you unless I put it somewhere where I wouldn’t lose it. For example, I know a black Sharpie is in the bathroom closet in a box with the cabinet door handles, but I have no idea where I put the silver ones so I wouldn’t lose them.

After my doctor and I got my psych medications right and the Wellbutrin kicked in, I’ve been in downsizing and renovation mode. I think 19 years of the house looking the same is long enough! I started with Mom’s bedroom and painted it glossy black. I’ve no doubt Mom is losing her mind looking down on me, but I really like it. Trim and ceiling are going to be black as well, because you just can’t have a black room with wood-colored trim and a white ceiling. That’s silly.

Theo being helpful
The shelf thing cleaned up nice!

After finishing most of the bedroom, I moved on to her bathroom, and I am having so much fun with it. It is black now, too, and I removed the shelf/ledge under the bathroom mirror and put it on the wall so it wasn’t in the way of the sink faucet.

The wood-colored backsplash had a recessed trim(?) the same color as the counter. Since I’m going with black and silver in Mom’s bathroom, I ordered some 1/2″ stainless steel-colored adhesive PVC piping which fit perfectly. I’m including a picture of the guest bathroom below, which has the same backsplash as Mom’s did, but a different VOG (vinyl-on-gypsum) wallpaper. I bought shiny silver contact paper for the counter and around the garden tub, which should be fun.

A peek of the old wall where the shelf/ledge was.
Guest bathroom backsplash

Because I bloop, bloop, bloop all over the place, I started tackling Mom’s walk-in closet in the midst of redoing her bedroom and bathroom. I haven’t gotten very far with it, but I am downsizing in a major way, and there is only so much the living room can hold in between trash days. Considering I have zero budget, this reno could take a while, but I am finding some really good deals on Amazon. I think the most expensive thing has been the paint, which is $48 a gallon. Since I’m painting everything that doesn’t move, I’m going to need a lot of paint!